Saúde para todos?: Estudo sobre a efetividade do direito às pessoas com Lúpus no Maranhão em face do princípio da dignidade da pessoa humana

Abstract

Rare diseases, despite affecting a small part of the general population, are an object of necessary discussion in Maranhão society, a list of which includes Systemic Lupus Erythematosus (SLE). The objective of this work ranged from the principle of human dignity to guaranteeing the right to health for people with lupus in the state of Maranhão. Regarding the specific objectives: the right to health and people living with lupus were explored; the protocols and policies aimed at lupus care in Maranhão were investigated; and the guarantee of the rights of people with lupus in Maranhão was analyzed from the perspective of human dignity. The question was: are the measures currently used to guarantee access to modern medicines for people living with Lupus in Maranhão effective? The hypothesis formulated was that despite the emergence of new medications to treat SLE, it is clear that there are major barriers in the search for adequate treatment for patients, such as the high financial cost of medications. The basis was the hypothetical-deductive methodology, formulating a hypothesis to prove it as true or false. The research was exploratory in nature, using documents, books and specialized works on the subject. It is concluded that it is important to have effective guidelines to guarantee the right to health; the provision of modern medications for individuals with lupus; and finally, more specific attention to these patients. Finally, individuals living with lupus are more vulnerable and require specific health care.